Drawings by kind permission of our friend Charlie Mackesy / @charliemackesy
We formed our Friends Groups as we are all carers & parents of children, young people and adults with undiagnosed or diagnosed Fetal Alcohol Spectrum Disorder (FASD); we support other carers and parents alongside our network of professional colleagues nationally and internationally who specialise in FASD.
We all started on this journey at different points but together we have become stronger and with the knowledge and skills we have gained along the way, we want to be able to offer you what we needed when we first started looking.......... friendship.
We offer you confidentiality, a safe space to talk and a friendly ear to listen.
Email: You can email us and chat confidentially to an experienced parent: firstname.lastname@example.org
Facebook: Our 'Friends' Facebook pages gives us lots of experience and support from across our community of FASD:
FASD Friends; South West UK: https://www.facebook.com/groups/888952215122780
FASD Friends; Home Education: https://www.facebook.com/groups/1643979936004911
FASD Friends; Ideas for Supporting & Teaching FASD: https://www.facebook.com/groups/493779352170508
Online: We run a monthly Online Friends session where we chat and share stories, we offer subject specific topics with 'Ask the Expert' guest speakers from a range of subjects that are relevant and chosen by carers & parents.
Please find a list of diary dates further below.
Drop in: 1:1 confidential online support & family support
WhatsApp: We provide a WhatsApp responsive friends group where we support each others challenges & celebrate our smallest but biggest marathon wins!
Play: We meet up and let our children and young people just be themselves .... they connect at a totally different level
Events: We host weekend & holiday events in discrete safe venues that are tailored to childrens needs
Cake: We meet up...... chat, laugh, share stories and eat cake.... but we are there for each other if we need to be or are there in the background when we need lifting
You are not alone - we will welcome you to a safe space to explore FASD and be supported through other parents who care.
EVENTS COMING SOON:
4th October 2022 8:30 - 9:30pm: Wills & Trusts; Questions & Answers session led by Amanda George; LLB (Hons) STEP (Trusts and Estates); notes found here
1st November 2022 8:30 - 9:30pm: FASD Questions & Answers; session led by Dr Cassie Jackson; Clinical Psychologist, Expert Witness & Clinical Lead FASD; notes found here
28th February 2023 8:00 - 9:00pm Dr Raja Mukherjee, Consultant Psychiatrist Clinical Lead Adult NDD & FASD, CCIO‑PLD; notes found here
29th January 2024 8:15 - 9:15pm; Clinical Psychiatrist Dr Cassie Jackson & FASD Hub South West Event focussing on the 'HPA Axis and supporting strategies for FASD'
29th April 2024 8:15 - 9:15pm; Clinical Psychiatrist Dr Cassie Jackson & FASD Hub South West Event focussing on 'Supporting strategies for FASD'
TBC March 2023 8:00 - 9:00pm; Prof Raja Mukherjee MBE Consultant Psychiatrist will join us for an exclusive online event evening of 'Ask the FASD Expert Q & A session'
Date to follow soon:
Supporting Success in FASD... more information to follow soon
Dr Naomi Fisher, Clinical Psychiatrist, 'out of the box' parenting
Dr Abigale Fisher, Educational Psychiatrist, supporting the EHCP
Prof Alan Price, FASD & Trauma Research, Psychology Lecturer Salford University
Disability Living Allowance Workshop; navigating the system, tailored to FASD
To be added to our mailing list or to find out more, contact us below or email us at: email@example.com
©FASD Hub South West & FASD Friends Reg.